Development and Initial Testing of a Mobile Platform to Assist Caregivers with an Infant with Congenital Heart Disease

The original aims of the project were as follows:

Aim 1. To design and refine an interactive platform for parents of infants with congenital heart disease to assist with feeding issues.

Aim 2. To begin an initial evaluation of platform use and understand the impact of the platform on parental stress and feeding management, as measured by:

1) data usage statistics of platform across users

2) caregiver perceptions of family-provider communication and confidence in feeding

Mobile Health (mHealth) Tools to Improve Patient Engagement, Research and Disease Management of Children with Rheumatological Disease

We designed and developed a homunculus based mHealth application for iOS to manage chronic arthritis in children from 7 to 18 years. To facilitate patient engagement and sustain patient participation, we incorporated highly interactive game mechanics and reward systems. To iteratively improve the application, the design and development team, along with clinical informaticians and engineering psychologists, developed a set of structured questionnaires to interview the stakeholders.

SickleREMOTE: Monitoring Sickle Cell Painful Crisis by a Novel Two-Way Texting System

Sickle Cell Disease (SCD) is the most prevalent hereditary disease, particularly among African descendants. Even with the advancements in modern medicine, SCD persists as one of the major world health problems recognized by international health agencies. Over three quarters of SCD sufferers are in Africa, where local medical insufficiencies make research into the disease difficult1. SCD is characterized by chronic hemolytic anemia and vaso-occlusion, leading to irreversible organ damage as early as 9 months of age.

Talk with Me Baby

To develop an app that helps parents track Milestones of language development with their child. The app will be used in conjunction with the campaign “Talk to Me Baby”. The app was demonstrated at the White House Oct 9 (2014). It was completed afterwards.

Nephrotic Syndrome Manager Mobile Application

Nephrotic syndrome is a common chronic kidney disease in children, with high risk of disease relapses and complications. Management requires home monitoring of urine protein by using urine dipsticks. We plan to design a mobile application (app) that harnesses the portability, accessibility, and ease-of-use of smartphones to assist in the reading of urine protein results. The app will perform colorimetric analysis of urine protein dipstick results using the built-in camera. The app will be developed on the iOS platform.